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The following reports and papers
have been produced by the research team to date. Major papers reporting
on the findings of the Genetic Discrimination Project across all
key areas are currently in preparation.
Taylor S, Treloar S, Barlow-Stewart K, Stranger M and Otlowski M (2008) 'Investigating Genetic Discrimination in Australia: A Large-scale Survey of Clinical Genetics Clients' 74 Clinical Genetics 20-30
Otlowski M, Barlow-Stewart K, Taylor S, Stranger M and Treloar, S (2007) ‘Investigating Genetic Discrimination In The Australian Life Insurance Sector: Use Of Genetic Test Results In Underwriting 1999-2003’ 14 Journal of Law and Medicine 367-395
Otlowski M, Taylor S, Barlow-Stewart K, Stranger M and Treloar S (2007) ‘The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination: Findings from an Empirical Study’ 9 International Journal of Discrimination and the Law 3-35
Taylor S, Treloar S, Barlow-Stewart K, Otlowski M and Stranger M (2007) ‘Investigating Genetic Discrimination in Australia: Perceptions and Experiences of Clinical Genetics Service Clients Regarding Coercion to Test, Insurance and Employment' 5 Australian Journal of Emerging Technologies and Society 63-83
Barlow-Stewart,
K., Taylor, S. & Otlowski, M. (2005) 'Knowing your genes: freedom,
burden or power?' in S. Wilson, G. Meagher, R. Gibson, D. Denmark
& M. Western (eds) Australian Social Attitudes: The First
Report. UNSW Press, Sydney
Taylor, SD, Otlowski, MF, Barlow-Stewart,
KK, Treloar, SA, Stranger, M & Chenoweth, K. (2004) 'Investigating
genetic discrimination in Australia: opportunities and challenges
in the early stages'. New Genetics and Society 23(2):
225- 239.
Treloar, SA, Taylor, SD, Otlowski, MF, Barlow-
Stewart, KK, Stranger, M. & Chenoweth, K. (2004) 'Methodological
challenges in the study of genetic discrimination: A review'.
Community Genetics, 7: 161-168.
Otlowski,
MF, Taylor, SD & Barlow-Stewart, KK (2003) 'Genetic Discrimination:
Too few data'. European Journal of Human Genetics 11(1):
1-2.
Otlowski,
M., Taylor, S. and Barlow-Stewart, K. (2002) 'Australian empirical
study into genetic discrimination'. Genetics in Medicine,
4(5), 392-395.
Otlowski, M., Taylor, S. and Barlow-Stewart, K.
(2002) 'Major study commencing into genetic discrimination in Australia'.
Journal of Law and Medicine, 10(1), 41-48.
Otlowski, M., Taylor, S. and Barlow-Stewart, K.
(2002) 'Australian empirical study into genetic discrimination'.
Eubios Journal of Asian and International Bioethics, 12(5),
164-167.
Other key references:
Barlow-Stewart, K. & Keays, D. (2001) 'Genetic
discrimination in Australia'. Journal of Law and Medicine,
8,250-262.
Billings, P., Kohn, M., de Cuevas, M., Beckwith,
J., Alper, J. and Natowicz, M. (1992) 'Discrimination as a consequence
of genetic testing'. American Journal of Human Genetics,
50, 476.
Geller, L., Alper, J., Billings, P., Barash, C.,
Beckwith, J. and Natowicz, M. (1996) 'Individual, family and societal
dimensions of genetic discrimination: A case study analysis'. Science
and Engineering Ethics, 2, 71-88.
Keays, D. (1999) 'The legal implications of genetic
testing: Insurance, employment and privacy'. Journal of Law
and Medicine, 6, 357.
Keays, D. (2000) 'When is genetic discrimination
justified'? Monash Bioethics Review, 19, 79.
Lapham, E., Kozma, C. and Weiss, J. (1996) 'Genetic
discrimination: Perspectives of consumers'. Science, 274(5287),
621-624.
Low, L., King, S. and Wilkie. T. (1998) 'Genetic
discrimination in life insurance: Empirical evidence from a cross
sectional survey of genetic support groups in the United Kingdom'.
British Medical Journal, 317, 1632
Taylor, S. (1998) 'A case study of genetic
discrimination: Social work and advocacy in a new context'. Australian
Social Work, 51, 51
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