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The following reports and papers have been produced by the research team to date. Major papers reporting on the findings of the Genetic Discrimination Project across all key areas are currently in preparation.

Taylor S, Treloar S, Barlow-Stewart K, Stranger M and Otlowski M (2008) 'Investigating Genetic Discrimination in Australia: A Large-scale Survey of Clinical Genetics Clients' 74 Clinical Genetics 20-30

Otlowski M, Barlow-Stewart K, Taylor S, Stranger M and Treloar, S (2007) ‘Investigating Genetic Discrimination In The Australian Life Insurance Sector: Use Of Genetic Test Results In Underwriting 1999-2003’ 14 Journal of Law and Medicine 367-395

Otlowski M, Taylor S, Barlow-Stewart K, Stranger M and Treloar S (2007) ‘The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination: Findings from an Empirical Study’ 9 International Journal of Discrimination and the Law 3-35

Taylor S, Treloar S, Barlow-Stewart K, Otlowski M and Stranger M (2007) ‘Investigating Genetic Discrimination in Australia: Perceptions and Experiences of Clinical Genetics Service Clients Regarding Coercion to Test, Insurance and Employment' 5 Australian Journal of Emerging Technologies and Society 63-83

Barlow-Stewart, K., Taylor, S. & Otlowski, M. (2005) 'Knowing your genes: freedom, burden or power?' in S. Wilson, G. Meagher, R. Gibson, D. Denmark & M. Western (eds) Australian Social Attitudes: The First Report. UNSW Press, Sydney

Taylor, SD, Otlowski, MF, Barlow-Stewart, KK, Treloar, SA, Stranger, M & Chenoweth, K. (2004) 'Investigating genetic discrimination in Australia: opportunities and challenges in the early stages'. New Genetics and Society 23(2): 225- 239.

Treloar, SA, Taylor, SD, Otlowski, MF, Barlow- Stewart, KK, Stranger, M. & Chenoweth, K. (2004) 'Methodological challenges in the study of genetic discrimination: A review'. Community Genetics, 7: 161-168.

Otlowski, MF, Taylor, SD & Barlow-Stewart, KK (2003) 'Genetic Discrimination: Too few data'. European Journal of Human Genetics 11(1): 1-2.

Otlowski, M., Taylor, S. and Barlow-Stewart, K. (2002) 'Australian empirical study into genetic discrimination'. Genetics in Medicine, 4(5), 392-395.

Otlowski, M., Taylor, S. and Barlow-Stewart, K. (2002) 'Major study commencing into genetic discrimination in Australia'. Journal of Law and Medicine, 10(1), 41-48.

Otlowski, M., Taylor, S. and Barlow-Stewart, K. (2002) 'Australian empirical study into genetic discrimination'. Eubios Journal of Asian and International Bioethics, 12(5), 164-167.

Other key references:

Barlow-Stewart, K. & Keays, D. (2001) 'Genetic discrimination in Australia'. Journal of Law and Medicine, 8,250-262.

Billings, P., Kohn, M., de Cuevas, M., Beckwith, J., Alper, J. and Natowicz, M. (1992) 'Discrimination as a consequence of genetic testing'. American Journal of Human Genetics, 50, 476.

Geller, L., Alper, J., Billings, P., Barash, C., Beckwith, J. and Natowicz, M. (1996) 'Individual, family and societal dimensions of genetic discrimination: A case study analysis'. Science and Engineering Ethics, 2, 71-88.

Keays, D. (1999) 'The legal implications of genetic testing: Insurance, employment and privacy'. Journal of Law and Medicine, 6, 357.

Keays, D. (2000) 'When is genetic discrimination justified'? Monash Bioethics Review, 19, 79.

Lapham, E., Kozma, C. and Weiss, J. (1996) 'Genetic discrimination: Perspectives of consumers'. Science, 274(5287), 621-624.

Low, L., King, S. and Wilkie. T. (1998) 'Genetic discrimination in life insurance: Empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom'. British Medical Journal, 317, 1632

Taylor, S. (1998) 'A case study of genetic discrimination: Social work and advocacy in a new context'. Australian Social Work, 51, 51

                             



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