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An important feature of the project design is the inclusion of an expert reference group and a national and international consultant, for access by the investigators as the study proceeds.

The Expert Reference Group consists of the following members:

Professor Don Chalmers Head of School, Faculty of Law, University of Tasmania and Director, Centre for Law and Genetics
Dr Chris Cordner Department of Philosophy, University of Melbourne
Mr Alan Doble
Actuary, Life Department, Munich Reinsurance Company of Australasia Ltd; member of the Institute of Actuaries of Australia Genetics Reference Group;
Dr Doug Ezzy
School of Sociology and Social Work, University of Tasmania
Associate Professor Eric Haan
Head of Department, South Australian Clinical Genetics Service, Women’s and Children’s Hospital, South Australia
Professor Wayne Hall
School of Population Health, University of Queensland
Ms Robyn Kapp
OAM, Executive Officer, Huntington’s Disease Association (NSW), Honorary Member and Past President of International Huntington’s Disease Association
Dr Steven Kates
Chief Economist, Australian Chamber of Commerce and Industry
Mr David Keays
Key Australian researcher in the area of genetic discrimination
Mr David Mico
Senior Policy Manager, Investment and Financial Services Association Ltd (IFSA)
Ms Sue Pennicuik Occupational Health and Safety Co-ordinator, ACTU
Ms Rebecca Johnstone Manager, Policy, Development and Research, Insurance Council of Australia
Professor Loane Skene
Faculty of Law, University of Melbourne
Dr Bruce Tranter School of Sociology and Social Work, The University of Tasmania
Dr Anne Turner
Head of the Medical Genetics Unit Sydney Children’s Hospital
Associate Professor David Turner Department of Haematology and Genetic Pathology, School of Medicine, Flinders University
Professor Bob Willimason Director, Murdoch Children’s Research Institute
Professor Evan Willis
School of Social Sciences, Anthropology and Sociology Department, La Trobe University

The consultants to the Genetic Discrimination Project are as follows:

Justice Michael Kirby National consultant
Professor Paul Billings International consultant


                             



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Final Recommendations